Seizure bound...

Moto42024

Member
Ok guys I am a survivor of a gun shot wound to the head back in 98 and ever since then my neuroligist stated that in 10 years or more I may be hit with a few seziures due to the brain trauma, anyway I just wanted to know exactly what type of cannabis am I supposed to be consuming to prevent me from getting seizures and also I am in a non-medical state which means it's illegal here any information will be greatly appreciated...:wall:
 

Comatoke

Active Member
i dont know much about marijuanas help for seizures, i am interested in the answer though if anyone can shine a light on this. there ARE plenty of better meds for seizures is my guess though lol
 

hotrodharley

Well-Known Member
Been a medical professional many years. No study exists involving marijuana and seizure activity as far as causation or therapy. In 17 years of ER in some HUGE places (Denver General, University MC (Level I trauma center) I have never even heard marijuana come up in treatment of seizure patients. Not giving you any green light but saying what I know and what I have observed.

Your physicians will place you on dilantin or tegretol or valproic acid or other anti-seizure medicine and, by Jesus, you damned sure better be taking that shit!!!! Take it as prescribed and show up for labs to show us your blood levels to check for therapeutic. Every seizure kills brain cells and these cells are not replaced! Read some of the other posters on RIU and see how that turns out with part of a brain.
 

Moto42024

Member
Thanks again Mr.Ganja and Comatoke will be looking for a cannabinoid treatment for my seizures your help is much obliged...
 

stumpjumper

Well-Known Member
Been a medical professional many years. No study exists involving marijuana and seizure activity as far as causation or therapy. In 17 years of ER in some HUGE places (Denver General, University MC (Level I trauma center) I have never even heard marijuana come up in treatment of seizure patients. Not giving you any green light but saying what I know and what I have observed.

Your physicians will place you on dilantin or tegretol or valproic acid or other anti-seizure medicine and, by Jesus, you damned sure better be taking that shit!!!! Take it as prescribed and show up for labs to show us your blood levels to check for therapeutic. Every seizure kills brain cells and these cells are not replaced! Read some of the other posters on RIU and see how that turns out with part of a brain.
There's plenty of evidence that cannabis helps control seizures. There are children benefiting greatly from it. There's also studies showing that cannabis actually helps rebuild brain cells so wouldn't you think it would be a great medicine for the OP?

It's a high CBN that you want I believe, I know they are treating a kid with it and it has made a huge improvement on his quality of life, and there is no buzz with it so it definitely isn't the THC thats helping.
 

Huel Perkins

Well-Known Member
There's plenty of evidence that cannabis helps control seizures. There are children benefiting greatly from it. There's also studies showing that cannabis actually helps rebuild brain cells so wouldn't you think it would be a great medicine for the OP?

It's a high CBN that you want I believe, I know they are treating a kid with it and it has made a huge improvement on his quality of life, and there is no buzz with it so it definitely isn't the THC thats helping.
You mean CBD?
[video=youtube;eY7uWfqoPzk]http://www.youtube.com/watch?v=eY7uWfqoPzk[/video]
 

racerboy71

bud bootlegger
There's plenty of evidence that cannabis helps control seizures. There are children benefiting greatly from it. There's also studies showing that cannabis actually helps rebuild brain cells so wouldn't you think it would be a great medicine for the OP?

It's a high CBN that you want I believe, I know they are treating a kid with it and it has made a huge improvement on his quality of life, and there is no buzz with it so it definitely isn't the THC thats helping.
yah, i know on that weed wars show, this father brought in a child who was suffering from seizures and the one owner guy talked to the father and recommended a high cbd tincture.. i'm not sure on the strain used, but it might mention it in that episode of weed wars...
 

bud nugbong

Well-Known Member
Cannabis really wont stop you from having siezures. I can recomend that you stay away from dilantin if possible. too many blood tests and it could damage your liver.

Its a scary subject, Ive had many siezures and i only recolect one or 2. The rest are like they never even happened. But obviosly someone was there to see me flopping around looking "nuts" I would feel tired the next day like i ran a marathon the day before(no energy and very sore). and a headache with that. usually a swollen tounge from biting it.

I have them because of head injuries as well. Goodluck with the whole situation.
 

gaztron3030

Active Member
I have seen a documentary where a woman is using cannabis butter to treat epileptic seizures. She would melt the butter and dip bread in it and eat abit. She said nothing else works. However my GF has a form of epilepsy and if she smokes cannabis when she is tired or lacking energy then she will usually have a seizure. So If you are treating a problem such as epilepsy please consult a medical professional as it can be complicated and you could do more damage than good.
 

Big Shady

Member
I have epilepsy and smoke regularly. I feel it helps with the side effects of the medicines I take. Keppra, Lamictal and Klonopin is one hell of a combo on me. Makes me feel like complete shit, no appetite, mood swings, etc. I,ve been on topamax and had allergic reactions to it. Been on several other meds that didnt work either. I live in Fl, a state with terrible MJ laws. I wish I had access to the more advanced medicines made with cannabis to see if I can stop taking these "legal" drugs that have side effects that can kill you. Only thing I have access to is bud off the streets. Dont know what strain it is 90% of the time and alot of it is commercially produced and harsh on the lungs. I have read several articles stating that CBDs will reduce and sometimes stop seizures altgether. Id like to grow my own smoke organically and not have to worry about going to prison for it.
 

oldchuck

Member
MJ and seizure control seems to be a mixed bag. Needs more research and better, more precise control of components.

I have Temporal Lobe E and took Tegretol and others for many years. Never complete control but I can only tolerate moderate doses of the heavy drugs. I am trying an experiment now with a cannabis tincture and the occasional toke. I have stopped the drugs completely and so far, after about four months, my seizure activity is down but not out. Still having about one a month which is about the same as with the Teg.

From what I have read high CBD and possibly high THCV and moderate THC levels are what I want for seizures. I am working on ways to get that mix, try it, and then refine it. This will take a while to work out. Anything is better than ataxia.
 

paparocks

Member
I have epilepsy and smoke regularly. I feel it helps with the side effects of the medicines I take. Keppra, Lamictal and Klonopin is one hell of a combo on me. Makes me feel like complete shit, no appetite, mood swings, etc. I,ve been on topamax and had allergic reactions to it. Been on several other meds that didnt work either. I live in Fl, a state with terrible MJ laws. I wish I had access to the more advanced medicines made with cannabis to see if I can stop taking these "legal" drugs that have side effects that can kill you. Only thing I have access to is bud off the streets. Dont know what strain it is 90% of the time and alot of it is commercially produced and harsh on the lungs. I have read several articles stating that CBDs will reduce and sometimes stop seizures altgether. Id like to grow my own smoke organically and not have to worry about going to prison for it.
my epilepsy meds
1000mg keppra
400mg lamictal...generic thank god
2 mg lorazepam

I'm 47 and have had epilepsy sense I was 3 from a head trauma.
my seizures are Generalized tonic-clonic grand mals that are triggered according to my depth of conscientiousness. ie; falling asleep and then again waking back up. When I fall asleep I have to do it quickly, so I take all my meds at once, 45min before bed. SLEEP IS CRITICAL for most epileptics. especially this one.
the regiment of meds I'm taking currently have been the most effective ever. The only thing is that I work construction and my body is starting to rebel. Pain was keeping me from falling asleep and over the past two years things have gotten progressively worse. violent seizures that choke you close to death and pissing and shitting the bed.
I dont take naps EVER!
at least until I met a little old hippy from outwest who is now living here in NC. Sadly she and several of her elderly friends are battling cancer. She asked me if I smoked weed and I about flipped........long story short.....she is now my caregiver in a state that has no mmj laws. Over the past year and a half I have been working with her and our grower out west to find the right strains that will treat not only the seizures themselves but the underlying pain that keeps me from sleeping. The anti-inflammatory effects of these strains are equally important as pain relief....the combo treatment of the two (pain/inflammation)indications equals a better treatment.
The hightimes cannabis cup LA cbd winner has my vote as top pick for this seizure patient. I tried the tsunami, harlequin, Blueberry kush and several other hybrids.
THC does play a positive role when battling seizures and finding the right balance between the two will be different among most seizure patients.
Like countering the negative effects of keppra, weight gain, weird ass mood swings that can make life miserable for those around you, thoughts of suicide, anxiety, irrational behavior, loss of sex drive, it can be done through the use of Grand Daddy Purple.
back in November, after suspecting the positive effects of GDP, we converted my mmj into capsule form using 1.5 grams per 24 #00 capsules. processed using coconut oil and linseed. I take two every night with my other meds. The medicinal levels of mmj remain constant through the night.
I sleep like a baby
my pain is absent
my mood is very mellow and level
my thinking is clear w/no confusion the next morning
I've lost 22 lbs in the past 6 months
I can now take naps during the day or whenever.....that alone is a major lifestyle improvement.

seizure control is difficult, but treating symptoms that increase seizure activity and countering the effects caused by harsh pharmaceuticals is not.

I will always encourage the use of marijuana to people suffering from seizure disorders. The positive far out weight the negative IMO.
Live life better

Note: my mmj is lab tested
 

cannawizard

Well-Known Member
I was diagnosed with some weird version of epilepsy back in 1996.. it starts with an "aura" --which is like a 10sec-30sec warning when everything gets blurry (cant see anything) then depending on the aura, it can become a full grandmal seizure~ doctors ran a bunch of tests and couldn't find anything concerning the type of epilepsy I have...

The meds I have taken are dilantin & tegretol.. both work to prevent the "auras" from turning into grandmal seizures, but they don't have any effect on the auras --which occur randomly :(

Tried so many strains (mostly high THC ones) and the only thing that worked for me were high CBD strains: cannatonic / harlequin / omri-something (forgot the name) ..
While I was on those strains, I had ZERO auras which meant ZERO seizures.. I was glad since I wanted to get off the epilepsy drugs (the side effects from those are: liver damage & failure, rare skin cancer, and the list goes on.. Side-effects on high CBD strains is NONE (unless you count munchies)

So yea, I agree with those who state that CBD works for seizures/epilepsy.. It works for me~

BTW, I come from a family of doctors who think cannabis is a joke, and would rather have me on those pharmaceutical poisons.. smh

#cheers
 

oldchuck

Member
It's very interesting to hear other people's experiences. Useful. Hopefully, others will speak up.

They tried the Keppra on me and I got the psychosis side effect. Didn't even realize it until my neurologist pointed it out and immediately took me off it. I haven't run across a single one of the standard AE drugs that doesn't have a whole hat full of nasty side effects.

I don't have access to any of the high CBD strains right now nor access to reliable testing. So I have to figure out ways to compensate for that. The high TCH strains help maybe but are no magic bullet. I suspect that I can't get enough CBD with those before I surpass my THC tolerance level. This will take time to work out.
 

Huel Perkins

Well-Known Member
I was diagnosed with some weird version of epilepsy back in 1996.. it starts with an "aura" --which is like a 10sec-30sec warning when everything gets blurry (cant see anything) then depending on the aura, it can become a full grandmal seizure~ doctors ran a bunch of tests and couldn't find anything concerning the type of epilepsy I have...

The meds I have taken are dilantin & tegretol.. both work to prevent the "auras" from turning into grandmal seizures, but they don't have any effect on the auras --which occur randomly :(

Tried so many strains (mostly high THC ones) and the only thing that worked for me were high CBD strains: cannatonic / harlequin / omri-something (forgot the name) ..
While I was on those strains, I had ZERO auras which meant ZERO seizures.. I was glad since I wanted to get off the epilepsy drugs (the side effects from those are: liver damage & failure, rare skin cancer, and the list goes on.. Side-effects on high CBD strains is NONE (unless you count munchies)

So yea, I agree with those who state that CBD works for seizures/epilepsy.. It works for me~

BTW, I come from a family of doctors who think cannabis is a joke, and would rather have me on those pharmaceutical poisons.. smh

#cheers
Hopefully the movement keeps pushing forward and soon we'll have some real medical studies that you can show to your family and say, i told you so!
 

cannawizard

Well-Known Member
Hopefully the movement keeps pushing forward and soon we'll have some real medical studies that you can show to your family and say, i told you so!
I'll still stick my neck out for people suffering from these disorders and say CBD works better than any of the pharma stuff out now (especially considering the side-effects), I use to know this elderly woman who passed away a few years ago because she was on such a high dose of dilantin, and even with the meds she still had episodes/seizures..

FDA is a bunch of drug nazis that will jail people for the just telling the truth.. Blood money makes the world go round~
 
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