canndo
Well-Known Member
I've had cluster headaches for over 38 years. They have been cronic for the last ten years. 3 to 4 a day and mine are some of the longest duration the docs have seen. mine last about 3 1/2 hours, compared to the normal of 30 to 40 minutes. I will tell you that they are devastating. The doc flipped open one of his doctor books and showed me the first paragraph of the cluster description. I quote "cluster headaches are quite possibly the worst pain known to man." Believe it. The pacing and head banging are the norm rather than the exception. Unfortunately I have a lousey cardiac history, and the docs will not let me use any of the triptan drugs. I have tried literally hundreds of perscription drugs, with little or no relief. Oxygen causes rebound headaches for me, and unfortunately I have been unable to use shrooms due to family worries of illegality. I don't have that problem, but it would be next to impossible to hide the shrooms from a wife of almost 40 yrs., and grown daughters. My personal opinion is that they are narrow minded. I never used to consider myself a "suicidal" person, but these babies make it cross your mind at times. You have no life at all.socializing is non-existant, and I'm on disability because no employer wants an employee that can't function for half of each day. life really bites.
I would be glad (at this time) to entertain any suggestions that might be usable in a stealthy manner. All responses and information is welcome Peace, be kind.
I don't mean to be nasty here but MY opinion of your family is that they are selfish - if they have seen you in that much pain and are not ALL FOR your trying anything, legal or otherwise to control it, I can't imagine they much care. I will further wager that eveyone in your family does something illegal for far less return than possibly reducing pain. Please, for your sake, find some mushrooms somewhere and see if they work, perhaps they won't and you can put your mind at ease but if they do? Why should you be doomed to this sort of a life because those you love "believe" in certain legal limits? Shame on them.