I've had cluster headaches for over 38 years. They have been cronic for the last ten years. 3 to 4 a day and mine are some of the longest duration the docs have seen. mine last about 3 1/2 hours, compared to the normal of 30 to 40 minutes. I will tell you that they are devastating. The doc flipped open one of his doctor books and showed me the first paragraph of the cluster description. I quote "cluster headaches are quite possibly the worst pain known to man." Believe it. The pacing and head banging are the norm rather than the exception. Unfortunately I have a lousey cardiac history, and the docs will not let me use any of the triptan drugs. I have tried literally hundreds of perscription drugs, with little or no relief. Oxygen causes rebound headaches for me, and unfortunately I have been unable to use shrooms due to family worries of illegality. I don't have that problem, but it would be next to impossible to hide the shrooms from a wife of almost 40 yrs., and grown daughters. My personal opinion is that they are narrow minded. I never used to consider myself a "suicidal" person, but these babies make it cross your mind at times. You have no life at all.socializing is non-existant, and I'm on disability because no employer wants an employee that can't function for half of each day. life really bites.
I would be glad (at this time) to entertain any suggestions that might be usable in a stealthy manner. All responses and information is welcome Peace, be kind.
