CVS Sufferer,
While I have not been diagnosed with CHS, I have been suffering from recurring nausea and vomiting for 3 years that, in the last few months, has become a nearly weekly occurrence. I have been hospitalized for it twice since February 2013. Up until about 5 days ago, I smoked roughly 3 grams of quality bud per day for the past 8 years. I am 26 years old, male, and have no health problems aside from this.
As far as symptoms are concerned, they began about 3 years ago when I would wake up feeling nauseated. Shortly after the nausea started, I'd vomit once and (after smoking) I would feel better. This continued off and on without me giving it much thought until February of this year, when I was floored by intractable vomiting for about 48 hours. I couldn't keep anything down (not even water), and the only time I felt like I didn't want to die was when I was in a hot shower. When the vomiting and nausea finally relented after that first episode, I chalked the experience up to acute gastroenteritis. However, about three days later, I woke up feeling nauseated. I went to work as usual, but by noon I was throwing up unstoppably again and had to go home. By the time evening came around, I could eat light food like white rice and slept. But as soon as I awoke the next morning, I had the same stomach pains and nausea. Again I went to work and again the unstoppable vomiting kicked in right around midday. The only thing that brought relief was a hot shower or bath. So long as I was under hot water, I felt alright.
This process went on for a few weeks until I finally said "screw it" and went to an urgent care clinic. I was referred to a gastroenterologist and had just about every test you can think of relating to the GI tract (CT scans, xrays, EGDs, barium swallows -- you name it). Absolutely nothing wrong (minus a wonderfully obvious hiatal hernia from the constant vomiting). Great blood work, no known allergies, perfect vitals -- I was and am perfectly fine minus the nausea and vomiting (well, and I am now severely underweight for my height). So I continued smoking and stuck to a very light diet, and also began taking Prilosec daily. After a week or so of no symptoms, I thought my problems were cured. But I ended up in the hospital over Easter weekend after 3 days of vomiting and being unable to keep anything down. While there, my WBC spiked and the attending nurse practitioner put me on two antibiotics (CIPRO and flagyl). My symptoms seemed to improve and, once I finished the antibiotics, I thought all was well. Until the same damned thing happened again about a week later.
My last episode of vomiting began last Friday evening and last well into Saturday morning. After getting some sleep, I again researched my symptoms for the thousandth time and I again found no explanation. Until I added 'hot showers' to the list. That did the trick and my search results were immediately flooded with a new answer: CHS. My immediate thought was BS. I mean, how could a known antiemitc cause hyperemesis? That makes no sense. But the more I read into the published medical journals and case studies, the more I think I have my answer. My symptoms match up almost identically to the Simonetto/Mayo Clinic case study. Unlike CVS, I have no history of migranes, no fever or diarrhea during episodes, and absolutely no issues with nausea as a child. (Up until three years ago, I could count the number of times I had thrown up on two hands.) On top of this, I am not triggered by any specific foods, nor is there a discernable pattern to the vomiting episodes.
At this point, I have been completely abstinent from ze herb for 5 days and I have already noticed improvement. Although I, too, was skeptical about CHS at first, I just do not know what else could be causing the problem. Although I absolutely love to get high, at my current weight/height (I am 6'1" and 129lbs now) I am quickly running out of options. If I can't find a solution to this problem soon, it will literally kill me. And I'll be damned if I gonna become the first known death directly related to marijuana consumption.
So if you're still around reading this (or if any other posters with similar diagnoses or symptoms are either), I would love your opinion. Also, I am happy to answer any questions about it y'all have. Fire away. At this point, I feel like I probably know more about CHS than most doctors. I have read and digested every published article and case study on the topic at this point (and since I have access to the pay-to-view articles through family in the medical field, I've done a LOT of reading on the subject).