Need real advice from parents with autistic children

[ANC]

We can not expect him to provide this service at no cost. There are just too many people to help.
Growing large scale high-grade weed, costs money.
If it was only one kid somewhere, I would say, you are right.

I would not say he is price gouging.

I would always suggest people buy a clone, grow it out, and clone it further until you have one plant for every day of the month. Buy a screw-based oil press and harvest and juice one plant every day.
This way nothing can contaminate and degrade the medicine the plant holds, plus it would not be psychoactive (as long as you don't mix it with nectarines and ground up fresh coconut with the water- then it supposedly will beat your arse).

 

[Drowning-Man]

I could imagine it being rough, and I'm sorry that through drs misdiagnosis she had those years of meds she didn't need.

I placed an order for a strain mentioned earlier in this thread, candida CD 1, I'm thinking that to start I'm going to make a candy edible for my son, granted this is awhile off obviously.

In the meantime I'm going to try giving Dr. Bonni Goldstien a call in the morning yo see if she knows of any physicians in my area that will try to get the ball rolling with legal cdb treatments for my son. I'm hoping for good news.


It's funny, I started smoking and growing pot solely because I liked getting high, fast forward a decade and I see real potential for cannabis to drastically help my son. It's crazy to think about, obviously I've known about the medical benefits of cannabis for years now, but never did I think that I would have a use, let alone pursue weed that doesn't get you high.

Were do you live? As far as i know Cbd is legal in all 51 states and probly canada.

 

[natureboygrower]

You know it takes about an ounce to make a gram of oil?

how so?

 

[TacoMac]

I'm going to take this in order, one part at a time:

So my dellima is as follows;

My son is 3, has what is suspected yo be autism, we cannot get a sound diagnosis, and right now things are tough.

I am in the same, exact boat. My son will be 5 in December.

My boy is non verbal, so just about any normal task can turn into a meltdown almost instantly.

God, I know. It is very, very, VERY difficult. We couldn't even get our son to point to what he wanted. You can't tell if he's hungry or full, sick or feels good...nothing.

I can't begin to tell you how many times it brought me to tears.

My wife and I have been working around the clock, learning and trying to teach him sign language, have specialists come in our home every day of the week, any and everything we can think of to advance him.

So did my wife and I. As much as I know this sounds impossible, you're going to have to be patient. When I say patient, I mean to levels not even Job could obtain.

It is, no doubt, the hardest thing in the world to do.

He has self harming behavior, he hits himself in the head, he is horrid to his little brother, and the list goes on.

That will right itself eventually if he's like my son. We gave him lots of stuffed animals and pillows and encouraged him to play/toss/squeeze/hit those rather than himself. It took nearly a year before he bought into it, but he did eventually buy into it.

Despite all of this, I obviously want nothing more than for my son to be happy and healthy. He is truly smart as a whip, and I love him to death.

Ditto.

I guess my question is, does cannabis help autistic people, or those in the spectrum, to lead a better life?

No. Not at this point. It will actually do far more harm than good.

I don't want my kid high, I just want to help him.

Good.

The first thing you need to do is contact the local board of education and find out whether or not special education pre-K classes are available.

If so, you'll have to fill out a bunch of paperwork and they will evaluate your son. (I went through it all here in Georgia. It was actually a pleasant experience that has turned out to be a Godsend.)

After the evaluation they will place your son in the pre-K program. He'll be placed in the autistic spectrum class, which is typically 10 to 12 children maximum, and he'll get speech therapy as well. (My son's class has only 6.)

It is the best thing since the advent of fire. I shit you not.

When my son started, he was 3 years old. By the end of his first year, he was speaking several words. 'Vent' and 'light' were his two big words. He would point at the vents in the ceiling here at home and at school or anywhere we went and call them out 'vent'. He does the same thing with lights.

Now he's moved on to his shadow, my shadow, everybody's shadow.

He speaks small sentences such as "More juice please" and "Daddy's puter off" (when I flip the lid on my laptop closed in front of him.)

Last week, I was floored when I rounded the corner and he said, "morning daddy'. He's not said it since, but I had that moment.

It's a very slow process. He just started taking the bus this year (only his 2nd in the pre-K program) and it was terrible the first day, but he's actually grown to love taking the bus.

There is no "magic cure" for what's going on, man. It's just hard work, some help (lots of it) and a shit-ton of patience and love.

We're nowhere near out of the woods yet, but I know EXACTLY where you are, how desperate you feel, and how hopeless it all seems. I remember it well.

I'm still frustrated because I'm greedy that way. I want more out of him, and it's hard to be patient. It's the hardest thing I've ever done. It makes beating cancer a walk in the fucking park, brother.

Hang in there. DO NOT use ANY medication for now no matter what ANYBODY tells you. Get him into a classroom special education program IMMEDIATELY.

Being around other kids of the same ilk in a learning environment will do more than you can possibly imagine. All any drug is going to do is cloud the mind of a mind already clouded.

It will be a disaster.

I wish you and your family nothing but the very best. Hang in there. Change is coming.

 

[ruby fruit]

I'm going to take this in order, one part at a time:



I am in the same, exact boat. My son will be 5 in December.



God, I know. It is very, very, VERY difficult. We couldn't even get our son to point to what he wanted. You can't tell if he's hungry or full, sick or feels good...nothing.

I can't begin to tell you how many times it brought me to tears.



So did my wife and I. As much as I know this sounds impossible, you're going to have to be patient. When I say patient, I mean to levels not even Job could obtain.

It is, no doubt, the hardest thing in the world to do.



That will right itself eventually if he's like my son. We gave him lots of stuffed animals and pillows and encouraged him to play/toss/squeeze/hit those rather than himself. It took nearly a year before he bought into it, but he did eventually buy into it.



Ditto.



No. Not at this point. It will actually do far more harm than good.



Good.

The first thing you need to do is contact the local board of education and find out whether or not special education pre-K classes are available.

If so, you'll have to fill out a bunch of paperwork and they will evaluate your son. (I went through it all here in Georgia. It was actually a pleasant experience that has turned out to be a Godsend.)

After the evaluation they will place your son in the pre-K program. He'll be placed in the autistic spectrum class, which is typically 10 to 12 children maximum, and he'll get speech therapy as well. (My son's class has only 6.)

It is the best thing since the advent of fire. I shit you not.

When my son started, he was 3 years old. By the end of his first year, he was speaking several words. 'Vent' and 'light' were his two big words. He would point at the vents in the ceiling here at home and at school or anywhere we went and call them out 'vent'. He does the same thing with lights.

Now he's moved on to his shadow, my shadow, everybody's shadow.

He speaks small sentences such as "More juice please" and "Daddy's puter off" (when I flip the lid on my laptop closed in front of him.)

Last week, I was floored when I rounded the corner and he said, "morning daddy'. He's not said it since, but I had that moment.

It's a very slow process. He just started taking the bus this year (only his 2nd in the pre-K program) and it was terrible the first day, but he's actually grown to love taking the bus.

There is no "magic cure" for what's going on, man. It's just hard work, some help (lots of it) and a shit-ton of patience and love.

We're nowhere near out of the woods yet, but I know EXACTLY where you are, how desperate you feel, and how hopeless it all seems. I remember it well.

I'm still frustrated because I'm greedy that way. I want more out of him, and it's hard to be patient. It's the hardest thing I've ever done. It makes beating cancer a walk in the fucking park, brother.

Hang in there. DO NOT use ANY medication for now no matter what ANYBODY tells you. Get him into a classroom special education program IMMEDIATELY.

Being around other kids of the same ilk in a learning environment will do more than you can possibly imagine. All any drug is going to do is cloud the mind of a mind already clouded.

It will be a disaster.

I wish you and your family nothing but the very best. Hang in there. Change is coming.

That' the big one...dont ever think as a parent you need to get him hanging around "normal" kids.
Cos if he has autism those kids will set him so far back with thier bullying its not funny.
Best wishes ive been there done that ..my daughter is now 20...

 

[TacoMac]

That' the big one...dont ever think as a parent you need to get him hanging around "normal" kids.
Cos if he has autism those kids will set him so far back with thier bullying its not funny.
Best wishes ive been there done that ..my daughter is now 20...

Very true, that.

My wife, being Russian, is more than a bit hard headed. She keeps trying to get him to "be normal" and compares how she was as a child to him.

I don't. Nor do the educators. His teacher, assistant, speech therapist and physical therapist and I are all on the same page: Baby steps. Keep him in the smallest, lowest level class available for now so he can grow along with those at his same level.

Far too often people push too fast too soon thinking their kid is normal, and that they'll just "pick it up" from the other normal kids.

Don't even THINK about going there.

 

[ruby fruit]

Very true, that.

My wife, being Russian, is more than a bit hard headed. She keeps trying to get him to "be normal" and compares how she was as a child to him.

I don't. Nor do the educators. His teacher, assistant, speech therapist and physical therapist and I are all on the same page: Baby steps. Keep him in the smallest, lowest level class available for now so he can grow along with those at his same level.

Far too often people push too fast too soon thinking their kid is normal, and that they'll just "pick it up" from the other normal kids.

Don't even THINK about going there.

Exactly !

 

[Keystone-grower™]

Very true, that.

My wife, being Russian, is more than a bit hard headed. She keeps trying to get him to "be normal" and compares how she was as a child to him.

I don't. Nor do the educators. His teacher, assistant, speech therapist and physical therapist and I are all on the same page: Baby steps. Keep him in the smallest, lowest level class available for now so he can grow along with those at his same level.

Far too often people push too fast too soon thinking their kid is normal, and that they'll just "pick it up" from the other normal kids.

Don't even THINK about going there.

See I'm like you, but my sons therapists , speech, physical, and occupational, are all pushing for us to put him with normal kids.

Even his behavioral therapist had the gall to say that my wife and I were not being strict enough with him, and that he just acts out to get his way. It's like none of them are willing to help and they are there just to collect a paycheck.

 

[TacoMac]

See I'm like you, but my sons therapists , speech, physical, and occupational, are all pushing for us to put him with normal kids.

I don't know why on earth they would do that...unless they're trying to save on funding. You can not, under any circumstances, rush these kids.

I've heard of a few cases where people followed the recommendations to put their kids with normal kids and it turned into a disaster. What's more, they didn't want to move the kids back.

When your child is non-verbal, there is NO WAY ON THIS FUCKING EARTH they should EVER be put with regular kids. I would, if I were you, tell them in your next meeting that you would like to have an independent doctor evaluate their recommendations.

Watch how fucking fast they change their tune.

 

[Bob Zmuda]

I’m sorry some of you guys are going through this. One of my best friends son is autistic and i have watched him struggle with many of these same issues.

He loves his son more than this world and would do anything for him. He’s even considering moving out of state because they found a specialist they absolutely love.

Good luck to you guys, I’m sure it’s not easy. Respect and good vibes.

 

[curious2garden]

See I'm like you, but my sons therapists , speech, physical, and occupational, are all pushing for us to put him with normal kids.

Even his behavioral therapist had the gall to say that my wife and I were not being strict enough with him, and that he just acts out to get his way. It's like none of them are willing to help and they are there just to collect a paycheck.

https://childmind.org/article/the-debate-over-sensory-processing/

Check out this debate on Sensory Processing Disorder to me this illustrates much of what is wrong with the mental health sciences. I frankly believe it is helpful for a child to receive help with sensory processing deficits whether or not science has decided it's its' own diagnosis or just a symptom of another disorder. So I'd find an OT who is a specialist in this in your area and get your child screened then you can have a professional push back on your kid's IEP for you.

You need to develop your own team of knowledgeable professionals that share your outlook on your child's care and treatment and have them advocate for your child.

 

[Observe & Report]

Here is what she says about cannabis in autism
http://www.bonnigoldsteinmd.com/cannabis-for-pediatric-autism/

Scientific basis:
http://www.cell.com/neuron/fulltext/S0896-6273(13)00361-9
https://link.springer.com/article/10.1007/s13311-015-0371-9

Didn't see any evidence in those links that Cannabis is an effective treatment for ASD. There are some anecdotes from a doctor, a single case study, some research indicating that there may be a relationship between ASD and endocannabinoid system. Not one randomized controlled trial. Even your supposed expert, Dr. Goldstein, says "Right now it is unclear, based on current understanding of the alterations in the endocannabinoid system in children with autism, if activating the system or blocking the system will help with the symptoms."

Doesn't seem like a good idea to give young kids Cannabis without any evidence that it would help. Instead you're probably hurting them.

 

[curious2garden]

Didn't see any evidence in those links that Cannabis is an effective treatment for ASD. There are some anecdotes from a doctor, a single case study, some research indicating that there may be a relationship between ASD and endocannabinoid system. Not one randomized controlled trial. Even your supposed expert, Dr. Goldstein, says "Right now it is unclear, based on current understanding of the alterations in the endocannabinoid system in children with autism, if activating the system or blocking the system will help with the symptoms."

Doesn't seem like a good idea to give young kids Cannabis without any evidence that it would help. Instead you're probably hurting them.

That's an interesting assumption. You know most of the effective pharmaceuticals cause horrific reactions and side effects, up to and including death. You think the drugs they give today, for that diagnosis, are an effective, and safe, treatment? Start reading here on one major side effect: https://www.ncbi.nlm.nih.gov/pubmed/1359485 you won't see that from Cannabis.

You think all drugs are prescribed for only their labelled disorders?
https://www.ahrq.gov/patients-consumers/patient-involvement/off-label-drug-usage.html

You do not seem to comprehend how medicine works or how to read the texts proffered. Medicine is not just a science but an art. We leave the pure science to the PhD's.

Edited to add:
PS
In PA autism is a listed disorder under their medical guidelines:
https://www.pa.gov/guides/pennsylvania-medical-marijuana-program/#17MedicalConditions
So go take this up with the state of Pennsylvania's public health physicians as they seem to have misinterpreted that same research

 

[whitebb2727]

Didn't see any evidence in those links that Cannabis is an effective treatment for ASD. There are some anecdotes from a doctor, a single case study, some research indicating that there may be a relationship between ASD and endocannabinoid system. Not one randomized controlled trial. Even your supposed expert, Dr. Goldstein, says "Right now it is unclear, based on current understanding of the alterations in the endocannabinoid system in children with autism, if activating the system or blocking the system will help with the symptoms."

Doesn't seem like a good idea to give young kids Cannabis without any evidence that it would help. Instead you're probably hurting them.

That supports her statement that prohibition has restricted the science.

I would look at Israel and what they are doing. They have been researching cannabis for 30 years or better.

I will also agree the pharmaceuticals used now are dangerous. They turn people into zombies.

 

[curious2garden]

That supports her statement that prohibition has restricted the science.

I would look at Israel and what they are doing. They have been researching cannabis for 30 years or better.

I will also agree the pharmaceuticals used now are dangerous. They turn people into zombies.

https://www.haaretz.com/science-and-health/.premium-1.803548

 

[Keystone-grower™]

Hey everyone, just thought I'd give a little update;

I'm currently awaiting a response from Dr. Goldstein.

I was talking to a few family members about how I'd like to go about helping my son, and I've got 100% support so far.

First my wife, obviously she and I discussed it first. Without hesitation she agreed with me.

Then my mother, she and I have a shitty past life, yet in the last few years, when she found out she was going to be a grandma, she got her shit together and is doing very well for herself. I won't go into detail, because it's not the topic at hand.

Anyhow she agreed wholeheartedly, having seen the effects of cannabis helping her patients with dementia, cancer, etc. Improve the quality of their lives.

Then third, my cousin back home down south. She is an early childhood intervention specialist, she works hands on with many children in the autism spectrum. She has done alot of reading up on cannabis helping children in the spectrum.

So I'm glad that I've got some family support.

On the other side of things, my son has started biting again, both himself and others. We have a zvibe, a sensory toy that is helping to stop him.

Conversely he has learned almost 20 signs in the last week, which helps dramatically.

 

[tyler.durden]

Hey everyone, just thought I'd give a little update;

I'm currently awaiting a response from Dr. Goldstein.

I was talking to a few family members about how I'd like to go about helping my son, and I've got 100% support so far.

First my wife, obviously she and I discussed it first. Without hesitation she agreed with me.

Then my mother, she and I have a shitty past life, yet in the last few years, when she found out she was going to be a grandma, she got her shit together and is doing very well for herself. I won't go into detail, because it's not the topic at hand.

Anyhow she agreed wholeheartedly, having seen the effects of cannabis helping her patients with dementia, cancer, etc. Improve the quality of their lives.

Then third, my cousin back home down south. She is an early childhood intervention specialist, she works hands on with many children in the autism spectrum. She has done alot of reading up on cannabis helping children in the spectrum.

So I'm glad that I've got some family support.

On the other side of things, my son has started biting again, both himself and others. We have a zvibe, a sensory toy that is helping to stop him.

Conversely he has learned almost 20 signs in the last week, which helps dramatically.

Sounds like you have a lot of support, that's fantastic. I hope the doc can assist you on your quest, please keep the updates coming. It's so refreshing to hear some positivity in this crazy world...

 

[Keystone-grower™]

Sounds like you have a lot of support, that's fantastic. I hope the doc can assist you on your quest, please keep the updates coming. It's so refreshing to hear some positivity in this crazy world...

Thank you, I agree, it's nice to have support, both here and in my family. Like I said where I live, cannabis is still demonized, so even though there is no THC in what I plan on giving my son, what I want to do is a big taboo locally. SK much so that if I talked to people here about it, I could guarantee that cys would get involved, because somebody would report me saying I was giving a toddler drugs. Just how it is around here, lots of people still stuck in the reefer madness mentality.

 

[BudmanTX]

So my dellima is as follows;

My son is 3, has what is suspected yo be autism, we cannot get a sound diagnosis, and right now things are tough. My boy is non verbal, so just about any normal task can turn into a meltdown almost instantly. My wife and I have been working around the clock, learning and trying to teach him sign language, have specialists come in our home every day of the week, any and everything we can think of to advance him.

He has self harming behavior, he hits himself in the head, he is horrid to his little brother, and the list goes on.

Despite all of this, I obviously want nothing more than for my son to be happy and healthy. He is truly smart as a whip, and I love him to death.

I guess my question is, does cannabis help autistic people, or those in the spectrum, to lead a better life? Have any of you with young kids given them edibles, tinctures, etc. And noticed positive change? If so, is high cbd what helped? What strains do you recommend for helping autism?
What are the beat ways to administer cannabis to a child?

I don't want my kid high, I just want to help him.

Thanks in advance.

i feel for u man, hope your young lad get the medicine he deserves and the wellness he needs.

have you thought of maybe infusing a few things, like virgin olive oils with cbd, maybe a butter as well, just a thought.

also look to new experiment and science data with Autism and Cannabis to help with your choices

not to look down on this site but i found something that might help its from 420 magazine, i read the science data for my wife who has ms, and its help me helping her as well. Like others have said and i support the conculsions.

here is that link : https://www.420magazine.com/forums/mental-health/

hope it helps, best wishes to you and your son

 

[Keystone-grower™]

Hey everyone, it's been awhile since I've updated how things are going.

I still haven't heard back from Dr Goldstein, but I'm sure she is a very busy person, so no biggie.

As far as getting my son cbd, I've placed an order with blue bird botanicals, I'm awaiting shipment. I haven't found solid dosage info yet, so I'll start small and see what happens.

On thanksgiving we had some family issues, my wife's grandad had a heart attack and things were glum as to be expected. He is out of the hospital now, we just don't know how lo g he will last. He is 84, and his health obviously failing. I think that when he passes, my son is going to take it hard as he is very close to pap.

Other than that we are still working with him around the clock giving him all the love we have. For Christmas my wife and I are making him a bunch of sensory toys, that we think will help him.

As far as growing a high cbd low THC strain for him, I think I got burned by seedsman, I ordered a few weeks ago and have yet to recieve the beans. Looking into possibly obtaining a clone of candida CD 1 or another high cbd strain.

I hope everyone had a good thanksgiving, and will have a great holiday season. We are into working 12hr days 7 days a week mandatory overtime at work so it may be awhile before I can update y'all on how things are going. I'm going to try my damndest to give you folks an update on how the cbd oil helps my son after we get it in the mail.

Again I'd like to thank all of you for your advice and support.

Until next time

Keystone