MS Discussion

mr west

mr west

Well-Known Member
Babs34 said:
I want to say my appointment is in March, maybe April? I will be expecting my newfound doctor to be well informed accordingly.

McGuyver, don't be so willing to put full faith in your neurologists knowledge. They deal with so many neurological assesments, they are so often clueless....take my word.

It took my own personal research to enlighten both my regular physician and neurologist. I had, not too long ago, been prescribed an antibiotic that gave me a series of nightmares...and this was only after a three day course. I just KNEW something was so completely OFF. It turned out I was right. Countless accross this country had the very same problems as I did. It had much to do with those with comprismised immune systems not safely partaking. It has taken clinical studies to figure this out, but I learned of it long ago.
When I had approached my past neurologist with this fact, she merely shunned it as highly unlikely.
Doctors are extremely imperfect in many aspects amongst their field.....particularly regarding medicine/treatments.
Accept they just don't keep up with everything pertaining to MS.
The MRI's are nothing short of a joke. It would appear getting one will be HARDER than it was in the past, but the way i look at it.......I'm in no rush to find out I have even more lesions running their course in my brain. I can sure as hell hold out on that information for another year or two.

I'll get back with my findings.....til then--:joint:
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I totaly agree with wot babs is saying bout telling the docs the score. Gp stands for genral practitioner Genral being the clue word lol. The nerologists are not much bettter. Ill be back this afternoon after confronting mione on our years visit at 1030 lol w2ish me luck lol
 
mr west

mr west

Well-Known Member
Well my neurologist says he thinks the vascular blockages are a secondary concern. He also said that we should wait to see what the americans do with it b4 we will concider it.
 
bobtokes

bobtokes

Well-Known Member
mr west said:
Well my neurologist says he thinks the vascular blockages are a secondary concern. He also said that we should wait to see what the americans do with it b4 we will concider it.
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how fuckin frustrating, whats it got to do with the americans
we will just fade away then while they scratch there arses
hey westy did your man know about this research
 
mr west

mr west

Well-Known Member
he knew all about it and the dr zamboni story. He also said it was kinda plagarisum if they started tests or something lol. Very frustrating I know, I think urd have to go private to follow this up.
 
bobtokes

bobtokes

Well-Known Member
ive got to see my man in the next few months, and i will ask him if he would be able to put me in touch with someone that would be willing to do it private, ive got nothing to loose i think i will be in a wheel chair in the next 12 months if the ms keeps advancing like it has been in the last year
 
mr west

mr west

Well-Known Member
Cant hurt to ask, I asked about a private mri scan a few years ago and they rushed a nhs appoint ment through for me lol. U never know ya donald.
 
growwwww

growwwww

Well-Known Member
bobtokes said:
how fuckin frustrating, whats it got to do with the americans
we will just fade away then while they scratch there arses
hey westy did your man know about this research
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Its frustrating for a good reason. Look whats happening with stem cell medicine and treatments...The east doctors and european doctors are shiftily claiming stuff...The western doctors are weary, FOR GOOD REASON they are researching it more throroughly and do trials to make sure everything works and is good...
 
bobtokes

bobtokes

Well-Known Member
growwwww said:
Its frustrating for a good reason. Look whats happening with stem cell medicine and treatments...The east doctors and european doctors are shiftily claiming stuff...The western doctors are weary, FOR GOOD REASON they are researching it more throroughly and do trials to make sure everything works and is good...
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yes fair comment
but if these vains are blocked where's the harm in unblocking them
 
growwwww

growwwww

Well-Known Member
bobtokes said:
yes fair comment
but if these vains are blocked where's the harm in unblocking them
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Unblocking them suddenly, may cause unnatural pressure in certain different vains or abnormal flow into parts of the body that arent use to it, which may cause extremely unwanted side affects... I dont know just trying to think of stuff. But its precisely the point why we cant so hastily go into trying these methods out so quickly, everyone reacts different to things aswell, they need to do trials to find safe and effective ways of doing this ( if its possible ) PEACE AND I WISH EVERYONE SOME GOOD BUD OVER CHRISTMAS
 
bobtokes

bobtokes

Well-Known Member
growwwww said:
Unblocking them suddenly, may cause unnatural pressure in certain different vains or abnormal flow into parts of the body that arent use to it, which may cause extremely unwanted side affects... I dont know just trying to think of stuff. But its precisely the point why we cant so hastily go into trying these methods out so quickly, everyone reacts different to things aswell, they need to do trials to find safe and effective ways of doing this ( if its possible ) PEACE AND I WISH EVERYONE SOME GOOD BUD OVER CHRISTMAS
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you might be right (the voice of caution)lol
i would take a chance :mrgreen:
 
growwwww

growwwww

Well-Known Member
bobtokes said:
you might be right (the voice of caution)lol
i would take a chance :mrgreen:
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Yeah, when these things come about and its really effecting people, people are usually so willing to invest so much. Using the previous example of stem cells, families raise 10s of thousands of dollars to send one of their paralyzed members of their family to China or India, they send the money and come back the same....having wasted 20 grand...Its sadddening, there must be so much caution when looking into treatments!
 
bobtokes

bobtokes

Well-Known Member
yes mate your dead right and there are the dodgy rip off merchants offering what ever you want to hear
but the vein thing is a bit different
 
MacGuyver4.2.0

MacGuyver4.2.0

Well-Known Member
He basically called Dr. Zamboni a quack and accused him of trying to further his own experimental research at the expense of others (he wouldn't be the first).:roll: His argument about the 'iron deposits' are as follows:

'Iron is a ferrous metal (magnetic) and any larghe deposits would have shown up on the millions of MRI's that have been done to date. Since a MRI machine uses extremely high strength magnetic fields to produce an image based on contrast, there is no way in hell that any amount of iron deposits in the brain (or spine) would go un-noticed. (or imaged)'

When I asked him why the University of Buffalo medical center is doing a clinical study of 1700 MS patients, he said it's like any other study that's funded with others money. Anyway, we didn't get very encouraging results. :cry:

We will continue to follow this work and the clinical trials being done at Uof B, but won't get our hopes up just yet.
 
mr west

mr west

Well-Known Member
sounds about right tho if u think about it logicly. The longer ive had ms the more crack pot apporaoches to dealing with ms there seems to be. Dose anyone remember that woman who dosed herself up on amino acids by drinking lots of coca cola?
 
Babs34

Babs34

Well-Known Member
mr west said:
sounds about right tho if u think about it logicly. The longer ive had ms the more crack pot apporaoches to dealing with ms there seems to be. Dose anyone remember that woman who dosed herself up on amino acids by drinking lots of coca cola?
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Hahaha....what? Never heard that one.
If only it were that easy.

I liked the bee therapy. :mrgreen: You've gotta be nuts to intentionally go into a room full of bees. Hell, if it were a one time deal and a cure to boot, I'm there.

MS is such a shitty disease. I think we'd all try just about anything. :peace:
 
Babs34

Babs34

Well-Known Member
Well, the man who operated on Kennedy (and a loved family member) has been enlightened to this procedure. Without getting direct input, I can almost guarantee he will not shun this study as bogus. He performs surgeries quite questionable to MANY neurologists.....quite successfully I might add. :peace:
 
growwwww

growwwww

Well-Known Member
Can i just say, you say its good news yes, but it could be years and years before they find out a way to introduce therapy effectively and in a reasonable budget to the majority of MS sufferes and for hospitals etc...Its such a long process when discovery and implementing any type of therapy ( which affects such a big number of people ) medicine or "cure". But i hope that some good stuff comes out of this, and ims ure it will - gets the ball rolling!
 
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